In Stage 1 of the TAKE-IT TOO study, separate focus group of patients, parents, and transplant healthcare professionals will be held. The patient and parent focus groups will discuss the challenges of medication adherence, things that help them stick to their medication schedules, and what kinds of technology they find helpful. The healthcare professional focus groups will discuss how to fit coaching interventions and online tracking of their patients’ adherence into their daily routines.
After all the focus groups have been completed, Dr. Annette DeVito Dabbs will lead analyses at the Qualitative Analysis Center in Pittsburgh. The results of these analyses will be shared with the stakeholder advisory panel (an independent group of parents, patients, and healthcare professionals), who will make recommendations about how to adapt the TAKE-IT intervention for use in the real world. Information from the focus groups will also help guide Vaica Medical in the design of the new e-pillbox and companion website in stage 2.
What is it like to be in a focus group?
Focus groups are round table discussions that promote open conversation about specific topics. Focus groups are a common method in both industry and research to collect valuable data on people’s opinions on anything from food to medical adherence.
Focus groups are composed of the participants, a facilitator and an observer. The facilitator will guide the conversation, make sure the participants feel comfortable, and keep the group on topic. The observer will observe the session and take notes, and help the facilitator if necessary.
All focus groups will be audiorecorded.